Tube wean, Day 8 and Day 9

Breakfast... milk and a little yogurt. Who knew this is what eating breakfast would ever be like.

Also. We are so down with this sippy cup thing, we can even do it in the cart at the grocery store. (Because at this point folks, when Jacob signs 'milk' he's gonna get it no matter where we are.)

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DAY 9

Day 9 ended in tears...

Happy happy tears. Unbelievable.

Are we done? No, of course not. It took 2.5 years for all of us to teach ourselves how to feed our 2.5 year old bodies. Jacob won't learn how to do that completely in a week. Not being dependent on the G-tube in a week though is remarkable. Understanding his own role in controlling how he feels is transforming even in such a tiny little person. The look of satisfaction and accomplishment on his face is all sorts of precious and amazing. The pleasure of confidently and safely filling his mouth with cold delicious milk is all his.... these little joys in life we never think twice about.

We still have a long road ahead of us watching weight stabilize and then monitoring gain.... working with food and flavors and improving the milk/food ratio of his intake... not to mention figuring out how this spoon thing works... because he desperately wants to do this by himself too...

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One more day. Final meetings... final therapist visits... follow-up plans... guidance for us as we plan to head home and his caretakers too ...Miss Emmy and Grandma.

We are no longer in the 'we are getting there' category. We are well on our way.

 

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