Jacob is on to us. He's figured out we aren't feeding him like we usually do through the tube. He feels crummy. He's mad. We are to blame. He gets it.
By the end of the day we had an all out meltdown at even the visual suggestion that we were going to try to eat again by mouth. Followed immediately by this...
Jacob's parents are tired. This post will be short. The good news is the people we are working with are great. He even let the therapist pick him up and hold him without resistance today which he rarely does that quickly. And even after meltdown and refusal by sleep she got him to take several (more than he usually does) sips of water by mouth from a cup.
No real progress on eating but safe to say we are well on the road to connecting all the crummy feelings of NOT eating. And that's a start.
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Hang in there! You have so many people rooting for you!
ReplyDeletePoor little stinker :( I'm sad he's sad. I hope everyone gets some rest. Xo
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