Tube wean, Day 2 and 3

Day 2 I did the first load of laundry. That's right. 2 days and we've generated an entire load of laundry. I think Jacob went through 4 outfits today. Totally covered in food. He worked really hard today. He tried. He did everything we asked of him. He did well. Lots of ups and downs but overall he hung in there. We did not turn any big corners with food but he definitely got lots of practice and more in by mouth than usual. (Just as a reference point that means maybe 2 oz. total. Maybe.)

Up...

(Yes. For perspective this *is* an Up pic, forlorn standoff look and all.)

Down...

Up...

 

He was very interested in his water though ...and drinking. And - hey, who's to argue. Given the choice, water *is* more critical. He did better with a sippy cup than we have ever seen. One step at a time. We are counting that as super huge progress (!).

(I believe if you click the pic above it will take you to a happy little video)

~

Day 3 brought another two loads of laundry. For just Day 3.

I would love to say we saw continued progress or something like that but not so much. So this is the standoff, right? Test of wills. In addition to eating being a skill Jacob doesn't have much of, it's also effort. Effort he has never had to expend. He also knows his parents are somehow responsible for this new reality, the ones he has mad manipulative skills for. How long will he wait to see if we will just fix it eventually without him having to actually do this hard new scary eating thing? How long before his brain decides this is his new reality and he better kick those instincts into gear? How long? Who knows. They say this is the period that is the hardest.

Yup. They are right.

~

We had a little bit of perky in the morning...

 

Not at all perky in the afternoon...

(In fact for the afternoon eating Jacob's parents had to leave the room because he kept melting down while we were present, so the therapist worked with him by herself and she did an amazing job keeping him focused when he was Not. Happy. At. All.)

A run to CVS for last minute supplies did result in this impulse purchase. Lights and music and we got some smiles at the end of the day before we went to sleep.

Tomorrow. Tomorrow is a new day, little bug. We are going to get there.

~

 

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