Laughing all the way...

Christmas around here is always a healthy mix of the giddy family cheer the postcards advertise and the feeling of stumbling across the finish line of a race that we didn't train for.

Thanks to some badly planned management meetings for Jacob's Mom the week before Christmas (not my decision) and a transition to a new position at work for Jacob's Dad (which started December 26 - crazy!), this year seemed to lean more toward the stumbling feeling.

But lest we not forget. Last Christmas Jacob was a sad sad sack - suffering from infantile spasms although we didn't know it at the time. Last year the week after Christmas we were in the ER starting a three month diagnosis and treatment odyssey that we still to this day don't even like to think about.

So this Christmas? This Christmas Jacob is a happy healthy little boy. This Christmas we were gleefully determined to enjoy.... stumbling along the way or not.

And enjoy we did.

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There was paper...

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Hanging out with Grandparents...

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FaceTime with family far away...

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More paper... (although you had to get it off the boxes first which was a LOT of work)

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Neighborhood lights... (Disclaimer: Not our house)

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And of course... the stuff inside those paper covered boxes...

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Cheers to a happy healthy Christmas!

 

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Season's Greetings To You and Yours

 

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Slow and Steady Wins the Race

Eating update! One bite at a time....

Jacob is still getting all (99.9%) of his nutrition via g-tube (the magic button in his belly). Since we started the blended diet, he's been doing great (really great - more energy, growing well, etc) but still all through the tube.

We practice eating by mouth. (.... and practice... and practice...)

Yes, Jacob is making progress. It's just slow going.

We hear from therapists that slow going is expected and that we should still be glad that we aren't fighting any oral aversions. So there we are. Still practicing and being thankful that practice isn't a fight. It's fun. Jacob just isn't quite sure yet what this eating activity is for.

The silver lining? How many parents of an 18 month old can say that their kid eats exactly what they want them to eat? Woohoo, we can!

'Cause when you are shoving it through a tube, he doesn't have much opportunity for an opinion. Here come the Brussels sprouts!

 

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Hello Holiday J.O.Y.

Spreading some joy as we head into / prepare for the holidays. Highlights so far...

 

Super soft new holiday pillows...

 

Devouring every holiday catalog that comes through the door...

 

And of course, the appearance of TRAINS (!) at Cousin Jonah's house...

 

 

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