Sunday, June 22, 2014

Oh we hate saying goodbye. But moving on, we must.

This past week was a transition for us. The previous week we had to say goodbye to Ms. Emmy. We miss her terribly and we stumbled through as best we could.

She is moving on and heading back to graduate school which we are thrilled for her about and wish her all the best! She is on her way to be wildly successful. We know this for sure.

We have no doubt that her brilliance will always be a little glimmer in Jacob's life. We were lucky to have had that brilliance as a big full time glimmer for the last 2.5 years and are so thankful for that.

These two have been best buddies through illnesses, surgery, medication changes, tube feeding, learning to eat, many many home therapy appointments, travel to extra art and therapy classes, a gazillion trips to the park to play and infinitely countless laughs and giggles.

And more laughs and more giggles. And more laughs and giggles...

 

The saving grace is that our summer substitute is familiar and wonderful so it eases the sting a bit. But we are going to be in a world of hurt when the fall rolls around and we have to find a Ms. Emmy replacement... we can't even think about it right now. Talk about big shoes to fill.

Jacob's team just wouldn't have been the same without her!

~

 

Tuesday, June 10, 2014

Three. 3. Three!

Jacob turned three this week. We celebrated over the weekend with family. And a picnic. And Elmo.

It was fabulous.

~

We haven't yet had a 'big' party for Jacob with a lot of other little people partly because Jacob's parents don't have the energy (or inclination) to plan that kind of thing but mostly because we don't think it's quite the time. Jacob gets overwhelmed with a lot of people and can retreat into quiet observer position pretty quickly. Not exactly how one might want to celebrate. As he gets older, he's gotten more rambunctious so who knows, maybe four will be the 'big' party year.

At three with all of his closest peeps around him, he was all about a party and celebrating... blowing out candles, digging into sugary stuff, ripping paper, getting absorbed in new toys.... and books and books and books...

~

~

~

~

~

It's true we can't really believe he's three already. Time does seem to disappear in front of our eyes and as it does, Jacob seems to be growing at lightning speed.

At the same time it's been a kinda long three years in our family (for a multitude of reasons). So we can't exactly say it's flown by. Not exactly. Not sure how to resolve those two observations.... or even if we need to.

At the end of the day our amazing little man is still three.

Three? Three! Like a bonafide toddler. For realz.

Happy Birthday Jacob !!!!!

 

~

 

Thursday, May 22, 2014

What's in a pound. A pound!

We had a weight check this past week. To remind everyone, Jacob was 26.5 pounds when we started the eating odyssey and he dropped to 22, then has been hovering around 22 since.... February. So weight checks are a bit stressful around here, watching and hoping he gains weight.

Guess what?!? He gained a POUND. No weight gain since February and then a POUND in the last three weeks! Yay!

We are still supplementing a little at night but if the weight gain continues and he stays germ free, we will be in a much better place to reduce those supplements soon and get back to only eating by mouth. Fingers crossed and spoons full!

 

~

~

 

Tuesday, May 13, 2014

Birthday Presents

It's birthday season around here. There are multiple people in Jacob's circle that celebrate birthdays in the spring, including Jacob himself and his parents. There are a cluster of celebrations as April turns to May and another cluster in early June.

And so we celebrate. Lots of things we celebrate.

Little hands that work so hard at fine motor movements and command over his fingers that can now help grandma put candles in a birthday brownie.

Bright eyes watching the magic of candles and learning how to blow them out.

The improved and hard fought for core strength, stability, and balance along with newfound confidence to sit on Dad's shoulders hands free... to feel the sensation of running down a hill at a family picnic with the boys.

There are some birthday presents you might never think to ask for, but trust us ....they are all joy to unwrap.

~