Weekend Update

This weekend is rainy misty rainy dreary (and did I mention rainy?) but the temperatures seem to be staying high enough to be convincing that spring is really coming. So we hold out hope.

Last weekend we had the sun in addition to the warmer temperature and Jacob and his cousin spent some good time outside enjoying it. Truth be told, the adults with them were loving the vitamin D probably just as much and so we lingered in the park longer than planned. Climbing on rocks, running around play equipment and watching ducks at the pond... and what's a sunny day without ice cream (?!) ...perfection.

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Jacob is now bravely but tentatively walking holding on to only one hand. (Huge deal).

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And as long as we are still trying to gain weight and ice cream is unlimited.... oh it's going to be a good summer.

 

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3:21 World Down Syndrome Day

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The walking quest... continued....

We realized that in the last walking update video, we used a little Irish music in the background. So, we thought it fitting to do another update with the same music today. The perfect day for Irish music.

We are on an ongoing quest to help Jacob build confidence walking. This involves a lot of... well... walking. Walking with us, with therapists, with toys, etc, etc, etc.... practice, practice, practice.

A couple weeks ago we got some new shoes. Not that there was anything wrong with his other shoes, but who knows, we all get a little spring in our step with new shoes, no?

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We also ventured to the Saint Pattys parade this past weekend. Which was a lot of fun for - oh - about 20 minutes.
 

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And then it was a little too much...
 

So we wandered back home... and practiced our walking some more.

Without further adieu, here is the latest walking medley. No, no. There is no independent walking ah-ha moment in the video. But we know you are in this quest with us even if you are watching from afar. Maybe the *next* video will have the ah-ha moment. Thanks for hanging in the with Jacob until we get there!

 

LINK TO VIDEO - POST

Foto Fabulous Friday

Hope your Friday evening has a good book too.

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Oh it's been a long winter....

Oh it's been a long winter ...and we are not quite out of it yet. Polar vortex and all.

Jacob's house has been a bit melancholy these days. We lost our beloved Aunt Berta a couple weeks ago and we are deeply broken hearted. We really aren't ready to talk/blog about it yet, emotions are still too raw... tears float too close to the surface..... but it feels wrong to start a blog post in our current sad state without mentioning it. Truth be told, if I could hear her whispering in my ear - and sometimes I swear I can - she would be telling me to get on with it... How's Jacob doing? What's he up to?

So, well, I'll get on with it. (sigh...)

On the eating front, the good news is Jacob is doing well. He's eating more and more every day and gaining confidence. He's full of energy, happy as a clam and sleeping well. So what's the bad news? The bad news he was still losing weight, 20%(!) total since we started. Which is a lot on a little guy. That coupled with a double ear infection that led to a sinus infection and multiple rounds of antibiotics led us to decide to supplement a little through the tube at night - when he's asleep and doesn't know we are doing it. Bummer.

We are watching closely to make sure it doesn't impact his progress of intake by mouth during the day and so far it hasn't. And at the last weigh in this week.... drumroll.... he had gained 5 oz! Yes, we realize 5 oz doesn't sound like much but it is the first weight increase since we started this process in early December. So, yay. (Yay!). When he gains a little more we will start reducing the nighttime supplements, but in the meantime we will keep plugging along.

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How do you eat avacado? Yum!

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In other news, the weather broke last weekend, at least for a couple days, and boy did we need that sunshine!

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We couldn't have gotten any *more* excited.

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And last but definitely not least, Jacob has a new friend. A best buddy... a pal. They play together, they do therapy together, Jacob can say his name (over and over and over) ...and best of all....(!) ...this new friend has finally (finally!) helped Jacob learn how to go to sleep all by himself. As long as his buddy is snuggled up with him.

I was lucky enough to capture the moment that they first met...

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